What Is The Long-Term Outlook For Patients Of Neurofibromas?

Neurofibromas or Neurofibromatosis refers to a nervous system disease, which causes tumors or skin defects on various nerve tissues followed by various other complications. The condition becomes worse with time. Hence, an individual should undergo the treatment as soon as possible to control his or her complications.

What Is The Long-Term Outlook For Patients Of Neurofibromas?

The long-term outlook for patients of neurofibromas depends on different aspects, such as-

Long-Term Outlook In Case Of Type 1 Neurofibromas

The long-term outlook for patients of neurofibromas type 1 varies in accordance with the severity of their health conditions as well as according to the signs and symptoms experienced by a specific individual. In most of the cases, people suffering from neurofibromas type 1 live healthy lives and for a long time, their life expectancy often tends to become low as compared to any common yet healthy people.

Long-Term Outlook In Type 1 Patients With Complications

In most of the cases, neurofibromas type 1 patients die because of hypertension or high blood pressure, malignancy and symptoms related to tumors or cancers in their spinal cord. However, positive thing, in this case, is that early detection combined with prompt yet timely detection to neurofibromas type 1 complications, such as tumors and cancers may bring improvement in the quality of people’s lives as well as the survival of their conditions.

Long-Term Outlook In Type 2 Patients

Tumors in Neurofibromas type 2 patients often grow at a slow rate. However, physical and mental balance, along with the person’s hearing capacity become worse with time. In some of the cases, tumors grow next to any vital structure, like for instance their brain. Hence, if these patients undergo proper and timely treatment, their situations get better.


A few of the patients suffering from the third and the most severe form of neurofibromas i.e. schwannomatosis experience mild to severe pain. However, pain in most of the cases is manageable with the right treatment.

Overall, the long-term outlook and life expectancy of a person suffering from neurofibromas is low irrespective of its type and underlying complications. Therefore, we should say that the disease is a severe one. (2)

In some of the cases of neurofibromas, the disease goes away or never takes place in individuals in the near future. For this, patients have to undergo proper diagnosis and treatment in time. Along with this, they have to follow a balanced diet and healthy lifestyle.


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